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The BC Cystic Fibrosis Association is a volunteer organization that works with and on behalf of persons with cystic fibrosis in BC. Representation includes members from Canadian Cystic Fibrosis Foundation (CCFF) chapters in BC, CCFF regional directors, an Adult CF Liaison, a District 5 Kin Liaison and advisors from BC CF clinics. The Association, whose programs are partially supported by a Government of BC Direct Access Grant, seeks to improve the quality of life for persons with cystic fibrosis by: - advocating on CF-related issues, including BC Pharmacare coverage, lung transplantation and newborn screening
- supporting CF clinics and outreach clinics
- raising public awareness of CF
- encouraging and developing CF volunteers
The BC CF Association is currently conducting a survey to assess the impact and effectiveness of provincially-funded programs designed to assist BC residents with CF and their families to attend CF Clinics and obtain CF-related medications. Your participation in this survey will contribute to a strong information base, and will help guide the BCCF Association in developing its advocacy priorities. The BCCF Association will keep you informed of its actions through its Web site. Click here to access the survey Are you interested in receiving future newsletters and other information regarding CF-related issues in British Columbia? Click here to submit your contact information to the BCCF Association and get on their mailing list! 2009-2010 BC CF Association MEMBERSHIP DETAILS Jodie Birnie, President, 604-869-1407
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Ron Nelmes, Secretary/Treasurer 604-594-1656
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Chris Black, Chair of Government Grant Advisory Committee
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Regional Directors Vancouver and Interior BC Region
Karen Kellett 250 330-4494 (Prince George)
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Vancouver Island Region
Gerry Underhill 250-652-8823 (Victoria)
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Contact Information for the Presidents of the various Chapters in BC:
Campbell River
Joanne Wallis, President, 250-923-3916
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Kamloops
John Bowers, President, 250-314-1606
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Nanaimo
Debra Tuck, President , 250-753-1597
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Okanagan Valley
Jody Birnie, President, 604-869-1407
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Prince George
Lesley Girard, President, 250-561-2129
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Vancouver and Lower Mainland
Todd Owen, President, 604-433-5643
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Victoria
David and Heather Strange, Co-presidents, 250-642-6906
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The BCCF Association administers a separate government grant to help offset costs of medication and travel for BC residents with cystic fibrosis. This assistance comes from a BC Ministry of Health grant and is governed by the BC CF Association. Since funding is limited, there are criteria or restrictions to obtaining these grants. For more information, please contact the Grant Administrator: Hazel Henderson
2640 East 4th Avenue, Vancouver, BC
V5M 1K4
(604)254-6466 4050 Graveley Street, Burnaby, BC V5C 4A5
Tel: 604-436-1158 Fax 604-436-1154 BC Children's Hospital CF Clinic 604-875-2146 St. Paul's Hospital Adult CF Clinic 604-806-8522 Victoria General Hospital CF Clinic 250-370-8084 Royal Jubilee Hospital Adult CF Clinic 250-592-1354 Forms and Documents 2010 Provincial Award Applications
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BC CF Association 
